教育演講11:善終與末期醫療
The end-of-life care for good deaths

程 序 表

E11-1
末期病人善終最新發展及影響因素
Quality of dying and factors affecting quality of dying of terminally ill cancer patients
程劭儀
台大醫院家庭醫學部

 Achieving a good death is the ultimate goal of hospice and palliative care. The concept of good death varies between cultures, geographic regions, religions, and generations. Therefore, it should not be seen as absolute and fixed. In 1988, Weisman defined good death as palliation of physical and psychological suffering to the maximum extent and a passing away with dignity. The good death should be characterized by awareness, acceptance, propriety, and timeliness. In recent years, many palliative care specialists have focused on the pursuit of good death from the perspective of their areas of expertise. A qualitative good death study conducted in Japan, where the culture is similar to that in Taiwan, found that “freedom from pain or physical/psychological symptoms” was the most frequently desired characteristic of good death and “having faith” was the least desired. A study conducted in Netherlands, where euthanasia is generally accepted, identified “the possibility to say goodbye to loved ones,” “dying with dignity,” “being able to decide about end-of-life care,” and “dying free of pain” as the most important good death characteristics. The most important characteristics revealed in a recent study conducted in France were “like to have an understanding doctor,” “to be at peace with themselves,” “to remain autonomous”. Zimmermann et al. stated that the quality of dying and death construct has seven broad domains: physical experience, psychological experience, social experience, spiritual or existential experience, the nature of health care, life closure and death preparation, and the circumstances of death. From our experience, using validated Good Death Scale and Audit Scales as measurement tools, we have identified lower Good Death score at admission, lower age 40–65 years, longer unit length of stay (>7 days), higher physician-assessed autonomy, better physician-assessed emotional support, and better physician-reported rate of closure as positively related (all p<0.0001) with improvement in good death scores in 2,375 terminally ill cancer patients from Hospice and Palliative Care Unit , National Taiwan University Hospital.